So yep, this is The Big Scan.
We came ‘home’ to GOSH yesterday to have our radioactive injection. After a few hours of assessments we proceeded to put a cannula in. This hurt. We then had some more checks and went to have our injection downstairs. This was supposed to sting badly. Our nuclear medicine team were great and she coped very well. She is now radioactive.
Daya loves Fireman Sam. She likes Peppa pig and Ben and Holly too. But she loves Fireman Sam…everyone who comes in ends up watching it with her…
Today I woke up very early. 3am. Here we are back to that familiar room you saw us in during 2017…everything is the same except that this child has been through many battles to try and win this war.
She’s Nil by Mouth and under GA today.
I think we are going to be fine.
She loves the big screens in nuclear medicine. They already knew about her love for Fireman Sam and had him lined up. She didn’t stop talking. It was amazing for her to see it so big and loud and fun to watch.
I met Tom Hardy today. The conversation went like this:
Tom Hardy: Hi…I’m Tom Hardy
Me: Um…that’s a good name! We were just talking about Tom Hardy!
Tom Hardy: Yes it leads to perpetual disappointment…
Me: *silence* (I shall neither deny or accept or respond to that comment)
Tom Hardy was the name of our anaesthetist. He’s a lovely chap. He’s also now into Fireman Sam…
After the scan I told him he was probably one of the most thorough anaesthetists we have ever had. He gave so much detail and input all the way through it was astonishing.
He went quiet, paused, looked at Daya and said, ‘I have a child the same age. I can’t imagine what you are going through and have been through. I read the notes’.
He was a lovely ‘Tom Hardy’.
I got a post scan treat for Daya…
Support from a fellow parent, who fully understands what you are going through, is priceless. During Daya’s scan I went to visit two mums. One has a child going into palliative care and the other has relapsed. I also bumped into some of our favourite nurses. They lifted me up. They are such good decent people. Our nurses at the local last week were the ones that got us through a shitty time.
Daya came back from the scan ‘like a boss’. I went to recovery to collect her. We had a cuddle. And then she directed us back to the ward. Whilst she was away, I made plans with a doctor for some of her next steps over the coming week. Never a wasted moment.
We had two lovely mums visit us one after the other. Both have recently lost their young children to cancer. Both were solid, beautiful and lively. Full of grace and warmth whilst dealing with a grief that comes in waves. This, their visiting us, is love.
And we finished our day with another true love. These two go back to the beginning. It was awesome to see Jenny at the beginning and the end of this day.
And we found a fire truck in the corridor on the way out!
We chilled and listened to our music on the way home. I am exhausted.