We are back home. This time we hope that we have no seizures or set-backs.
We are home. That’s the good news. It’s tough at home but there’s also no place like home.
Daya’s not so sure of Anaya’s new close relationship with her Tanya Rabbit.
Truth be told, Daya is tired and skinny and finds it too stimulating at home. She’s used to the peace, isolation and silence of a hospital room.
She’s adjusting as are the other two.
Jasmine looks after her. She loves her endlessly. She will bring her water and tell her to ‘dink!dink it’ (drink).
She will share her grapes and try and feed her….which is big as Jasmine loves her food.
Luckily we came home from our local hospital quickly. But had to go back to GOSH to do some tests.
Her original play lady was on hand. I noticed that Daya didn’t cry once with her, yet with me, when she did the same tests, she screamed and cried every time. Daya is happy with her.
Below you can see one of our nurses helping Daya and Daddy on their secret mission to leave GOSH and surprise us at home. Even the most respectable nurse has a little bit of naughty in her.
Daya’s hair reminds me a little bit of the original Incredible Hulk, Lou Ferrigno, no?
Which kid doesn’t love a parachute? I know these two do and given that they don’t attend an array of music classes having the parachute at home was super exciting. Jasmine did her best impression of Mowgli from the jungle book.
I’ve been awake all night so far. Last night she was irritable and woke me up 7 times to change her nappy. The night before we were up most of the night again. And the night before that too. I’m beyond shattered. My whole body hurts. Anaya popped in last night as well because it was just ‘too hot, mummy’. I can hear the thunder rolling as I type this. I can also hear all about ‘george’s dinosaur’ and ‘meow meow’ and ‘change me. Change my nappy. Done weewee’ and ‘want something dink’.
In the morning on minimal sleep I’ll have to look after the other two as well. Two bad nights in a row messes you up.
In more news, Jasmine has been channeling Frida Khalo. She’s also been to see our favourite doctor. I got to have the special love today until I had to FaceTime daddy to keep Jasmine entertained. He’s had a haircut by the way, it looks good. The doctor, not daddy… I might start surreptitiously updating you on things to do with both of them… Daddy has had a haircut and he accidentally punched his trainer in the face during a sparing session. But back to our Doctor, was great to see him. I was too tired I couldn’t talk at my usual rapid pace. It was strange being there with Jasmine. I was able to switch off a bit where other parents would be on high alert. Not as many worries…and then she was back home with her Daddy (favourite parent (but they have spent more time together).
The kids are ours. The dogs aren’t.
I had to stop typing this as Daya became unwell.
We have rushed to our local.
And we are now living at our local hospital with our wonderful team. As much as no one likes to go to the hospital it’s awesome when Ruthie and Claire are there. Daya does everything for Ruth without any tears. They had a chat, did some observations on little Daddy and a dressing change. Even when she’s not well, Daya smiles and engages with Ruth.
She did a whole dressing change for her without any intervention from Mummy. Daya loves her. Ruth makes her feel safe. What more could a parent ever want for their child…
Daya has had a lot of back and forth between hospitals and I have lost track. This time I went home and stayed with the other two little bears. Daddy and Daya had some ‘we’ time (she coloured in and he did his work) and we went to the park.
We went to look for Muddy Puddles. Daya hasn’t ever jumped in a puddle but she does love Peppa Pig and talks about Muddddddyyyy Pudddleeesss.
Just one little walk in the rain with these two is all I have had this year. No holidays, No Eurodisney, no zoos or aquariums, no museums or meals out…it was time well spent. Lots of singing and dancing in the rain from Jasmine, water filled boots from Anaya and a warm fuzzy feeling in my soul.
J: Mummy!Mummy! Mummy duck. Naya duck. Jammin duck. Daya duck. Heheheh
A: Mummy my boots are all wet inside…
P: Anaya you haven’t truly lived if your boots haven’t been half-filled with water at some point in your life! Go for it again.
When it rains, look for rainbows….or better still come alive, fill your boots and go jump in muddy puddles.